The project, which began a few months ago with a series of meetings between clinical researchers, stems from the need repeatedly communicated and requested to the Italian and European PANS community by PANDAS Italia ODV to study the epidemiology of the syndrome and sees the collaboration of (in alphabetical order):
Pediatric Clinic University of Cagliari (Prof. S. Savasta)
Pediatric Clinic University of Catania (Prof. P. Pavone)
Paediatric G. Gaslini, Genova (I.R.C.C.S)
Neuropsichiatric Department (Prof. E. De Grandis)
Pediatric Clinic University of Messina, Neuropsychiatry Department (Prof. A. Gagliano)
Policlinico Umberto I Dip. Maternal and Child Paediatric Area Sapienza University of Rome (Prof. A. Spalice, Dr. M. Capponi Dr. C. Guido, Prof. M. Pasquini – Neurosciences Department).
Decisive for the development of the project was and will be the contribution of Engineer Luigi Ottoboni, volunteer member of PANDAS Italia ODV and expert in Artificial Intelligence, who a few years ago proposed and made available free of charge to the entire community PANS / PANDAS its wide expertise through the creation of a Machine Learning, already active, able to predict the therapeutic success of IVIG and corticosteroids through the use of data provided anonymously by 304 parents of Italian PANS or PANDAS patients and by the much larger database (also anonymous and in compliance with EU and US privacy directives) in the United States.
PANDAS Italia ODV thanks the Italian Society of Pediatrics in the person of its President, Prof. A. Staiano, for the commitment and resources made available to young researchers, all the clinicians of the university centers involved and all the professionals and collaborators who take part in the project.
For more information contact the secretariat of PANDAS Italia ODV: segreteria@pandasitalia.it